PSYCHOSOCIAL ADJUSTMENT OF PATIENTS WITH BEHăET'S DISEASE: THE EXAMPLE OF TURKEY

Abstract

Author(s): Merve Deniz PAK G├ťRE

Living with Behçet’s Disease, the chronic disease causes serious negative effects on the patients’ quality of life and adjustment due to its symptoms and disruptions in patients’ physical activities. This study was conducted to evaluate the psychosocial adjustment level of the patients with Behçet disease. The population of this study consisted of all patients, diagnosed with Behçet’s disease according to the International Working Group Diagnostic Criteria and registered at Behçet and Familial Mediterranean Fever Patients Association and who were above 18. It was aimed to reach all these patients and 64 patients with Behçet’s Disease were included in this study. In this study, a questionnaire and Psychosocial Adjustment to Illness Scale-Self Report (PAIS-SR) were utilized in order to collect data. The mean score of the patients with Behçet's Disease-related to the sub-scales of the Psychosocial Adjustment to Illness Scale-Self Report (PAIS-SR) was found to be 57.16±11.2. This score refers that the patients had a poor disease adjustment level. According to the Psychosocial Adjustment to Illness Scale-Self Report, 48.4% of the patients had poor disease adjustment levels while 39.1% of them had moderate and 12.5% of them had good disease adjustment levels. The scores related to the sub-scales are as follows: healthcare orientation X? =12.86 ±3.82; psychological distress X? =9.52 ± 4.72; domestic environment X? =8.56 ±4.97; social environment X? =8.31±5.24; vocational environment X? =7.63 ± 3.41; sexual relationship X? =5.92 ±4.57 and extended family relationships X?=4.36 ±3.46. This study has shown that the psychosocial adjustment of the patients with Behçet’s Disease to this illness is low, and there are problems related to health care orientation, psychological distress, domestic environment, and social environment. The evaluation of the conclusions of this study is of importance for providing both healthcare and psychosocial services.

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